Fibrodysplasia Ossificans Progressiva (Stoneman Syndrome)

Fibrodysplasia Stoneman Syndrome: Ossificans Progressiva Why is Stoneman syndrome called that? It has also been referred to as "Stone Man Disease" because it results in painful, stony-hard swellings that are severely morbid and disabling. In the medical literature, only roughly 600 cases have been described. How long is Stoneman syndrome tolerable? The average lifespan is about 40 years old. By the second decade of life, the majority of patients are wheelchair-bound and frequently pass away from thoracic insufficiency syndrome-related problems. A condition known as fibrodysplasia ossificans progressiva causes the bone to gradually replace muscle and connective tissue, such as tendons…